Back for scans in preparation for clinical trial

So on Friday I will go back to Huntsman and have another MRI scan in preparation for the clinical trial. The clinical trial will start, if everything gets approved, on the following Wednesday. It will be nice to start treatment, even if it is the placebo.

My face is healing pretty well. I went back to the doctor because I had two lumps in my cheek. The one lump was full of fluid and the other was full of blood. They are going to test the blood just to make sure.

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Alot of things have happened....and I'm a slacker!

It's been a while and some things have happened that I should update those that follow. I have had good luck with treatments and my scans have been clear (up to this point!) The major problems have been with my sinus'. I had surgery on my nose to correct a deviated septum (which I also had corrected when I was 16) and to clear out my sinus' so I could breath. I was breathing at night like I had sleep apnea but I did not have sleep apnea. I was having problems sleeping at night which was corrected after the surgery. I then started to have problems that I thought were related to allergies. The problem was that my nose would plug up but nothing I took (allergy pill-wise) would clear up my nose. I could not sleep at night and it was very unpleasant and gross! The nose doctor ( Dr. Riddle) said he could clear it up pretty quick by simply giving me a topical steroid to put in my nose. The problem with the steroid was that I can...

When People Think You Are Dying

I received an interesting email from a friend this week. It said he had heard I had relapsed and he wanted to get together and go to lunch. I was really appreciative of the invitation but started to wonder why he thought I had relapsed. I spoke with this friend who told me that he heard through someone else that I was "terminal" and that I only had a few months to live. He also told me that this message had been received by many in an announcement made at a meeting. I was a little shocked! First that someone heard I was dying and second that I mattered enough to have it announced! I assured my friend that I was doing just fine and that I was not "dying". I told him that I had no new re-occurrence of melanoma and that my treatments were going just fine. This made me start to think about life in general and how we communicate! In regards to communication, I learned how this information was obtained. It was taken out of con...

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Since my last infusion, I have noticed changes a lot earlier in this round than normal. I usually notice "issues" near the end of the treatment cycle. I have noticed more and more that I am forgetful. I have trouble remembering names and every once in a while I forget what I am talking about. It could be just my age as well as the drug. I have been playing basketball twice a week to stay in shape and to stay active. I have been doing this for over a year. Just in about the last month, I noticed that I get very sore especially after sitting for more that about 30 minutes. I wake up in the morning and my joints are very sore. My back will be stiff, my shoulders will be sore, and by hips, knees, and ankles will be very sore. It makes it difficult at times to simply walk. Walking up and down the stairs is also very difficult. I have noticed that places that I have previously injured are also more sore than usual. I ha...

My Life's Journey with Melanoma

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